Rep. Jim Costa Introduces National Plan for Epilepsy
WASHINGTON - Representatives Jim Costa (CA-21) and Greg Murphy (NC-03), Co-Chairs of the Congressional Epilepsy Caucus, introduced H.R.1189, the National Plan for Epilepsy Act, bipartisan legislation that would establish a national plan to coordinate research and essential services for those living with epilepsy.
“As someone who has seen firsthand how epilepsy impacts families in the San Joaquin Valley, I know we must do more to support those living with this condition,” said Congressman Costa. “Inspired by my mentor, Tony Coelho, and his lifelong advocacy, I’m proud to introduce the National Plan for Epilepsy. This bipartisan bill will strengthen care, expand resources, and ensure that those affected have a voice in shaping the policies that support them.”
“As home to the only Pediatric Epilepsy Treatment Program in Central California, Valley Children’s Healthcare appreciates Congressman Costa’s leadership on this important legislation in partnership with Congressman Murphy and Senators Schmitt and Klobuchar. The future of epilepsy in children relies both on research into disease prevention as well as on the development of new medications and less-invasive neurosurgical procedures that are accessible to everyone, including low-income populations. A National Plan for Epilepsy will play a significant role in supporting this work and in improving the lives of those with epilepsy, including the children we treat every day at Valley Children’s,” said Cesar Santos, MD, Medical Director for Pediatric Neurology at Valley Children’s Healthcare.
BACKGROUND
Epilepsy is a chronic noncommunicable disease of the brain that affects around 50 million people worldwide. Epilepsy is not a rare disorder - approximately 3.4 million Americans are living with epilepsy nationwide. About 1 in 26 people will develop epilepsy at some point during their lifetime.
The National Plan for Epilepsy Act is a landmark initiative to improve epilepsy care, research, and public awareness across the United States. This legislation mandates that the U.S. Department of Health and Human Services develop and maintain a comprehensive national epilepsy plan, with annual progress assessments to ensure accountability and effectiveness.
To strengthen coordination and public engagement, the Act establishes an advisory council tasked with raising awareness and providing critical guidance to U.S. health officials. Additionally, the legislation would require biennial reports to Congress, offering key recommendations to enhance policies, funding, and support for individuals living with epilepsy.
The goal of the National Plan for Epilepsy is to improve research, care, and services for individuals with Epilepsy and ensure a coordinated federal response. U.S. Senators Eric Schmitt (R-MO) and Amy Klobuchar (D-MN) are leading the Senate version of the bill.